The New Face of Caregiving: Male Caregivers
By: Cathie Gandel Source: AARP Bulletin Today January 23, 2009
When his wife, Chris, was diagnosed with breast cancer on their 19th wedding anniversary,
Dave Balch suddenly found himself with two full-time jobs: running his home-based software
business and taking care of her. “I don’t know how I managed everything,” says the 60-year-old
from Twin Peaks, Calif., whose wife continues to fight recurrences of the disease six years later.
“But you do what you have to do.”
Each year, more Americans are finding themselves in a similar situation—and challenging
preconceived ideas about men and caregiving.
“People think that male caregiving means that the guy calls home from the job and asks his wife
how his mom is doing,” says Donna Wagner, professor of gerontology at Towson University in
Towson, Md. “That’s not true at all.”
A 1997 survey conducted by AARP and the National Alliance for Caregiving, a research and
advocacy coalition, found that 27 percent of caregivers were men. By the 2004 update, that
figure was almost 40 percent, with more male caregivers (60 percent) working full time than
women caregivers (41 percent). Among the reasons for the increase: smaller families, longer
life spans, more women working outside the home and greater geographic separation of family
members.
While male caretakers face many of the same challenges as their female counterparts—
including depression, stress, exhaustion and reduced personal time—they approach their
caretaking role differently, say some experts.
“Men approach caregiving as a form of work, a series of tasks that needs to be accomplished,”
says Edward H. Thompson, coeditor of Men as Caregivers and director of gerontology studies
at Holy Cross College in Worcester, Mass. “I don’t mean that to sound harsh. It’s just the way
they look at things.”
Because they are used to delegating, they are more comfortable seeking outside help when
they need it, says Richard Russell, associate professor of social work at the State University of
New York’s College at Brockport.
Donald Vaughan, a 51-year-old freelance writer in Raleigh, N.C., has an aide come in three
times a week to bathe and shave his father. “It’s worth every penny I pay,” he says.
But despite feeling isolated, men tend not to seek help for themselves, at least not from
traditional support groups. Instead, some forge their own connections. In Rochester, N.Y., some
fellow caregivers meet once a week for breakfast. “The men talk about sports, politics and
grandchildren,” Russell says. “They don’t mention caregiving. It’s as if they have made a pact
that this is their time to be just regular guys.”
Men also try not to bring their caregiving situation into the workplace. They not only have been
socialized to keep things close to the vest, they also perceive a stigma associated with taking
time off for caregiving responsibilities—and sometimes a lack of understanding from employers.
John Young experienced that feeling firsthand. The 55-year-old nursed his late wife through
Lewy body dementia, a disease that combines the mental deterioration of Alzheimer’s disease
with the physical disability of Parkinson’s disease. When his wife became ill, Young was
teaching in a police academy in a Houston suburb. At first she was able to stay on her own
while he worked, but one day she called with an emergency and he had to rush home. “When I
returned, my boss called me in and asked, ‘How much longer does she have?’ ” Young says. “I
knew it was time to go.”
Even those who work at home have trouble juggling responsibilities. “Taking care of my dad has
had such a dramatic impact on my life,” Vaughan says. “One part of my brain is always on my
father. And my time is nickel-and-dimed throughout the day. It’s hard to get a long period when I
can do my work.” He interrupts his writing intermittently to make sure his father drinks enough
fluids and walks up and down the hallway for exercise.
“The worst part is the exhaustion,” says Gary Noble, 64, who cares for his wife, who has multiple
sclerosis. He also works as a bus driver in Livermore, Calif., and often has split shifts. He may
come home at 8:30 p.m. Before he goes to bed at 9:30, he has to cook, clean up and tend to
his wife’s needs. He needs to be up again at 3 a.m. “I’d appreciate just a few hours off
sometimes,” he says.
John Carlson, 57, of Woodbury, Minn., takes care of his 88-year-old father, who is in the early
stages of Parkinson’s. “The most difficult part is having time away from home,” he says. “Dad
covets my time, as most of his days are spent alone.”
While any relationship may suffer in the caregiving equation, the issues are particularly difficult
for those caring for a spouse, says Donna Wagner. Richard Anderson, president of the Well
Spouse Association, a nonprofit organization that provides peer support to those caring for a
partner with chronic illness or disability, agrees. He took care of his late wife, who had an
autoimmune disease, for 29 of their 31 years of marriage.
“Spousal caregivers are different because of the intimacy of the relationship,” he says. “It’s hard
to have sexual feelings toward your partner if you have to deal with incontinence and other
personal issues.”
Despite the difficulties these men face, there is some good news. “My wife and I spend a lot
more time together,” says Ray Heron, 57, of Charlottesville, Va., who has been caring for his
wife, who has MS, for 10 years.
The caregiving relationship has brought Chris and Dave Balch closer, too. “This can really put
your love for each other to the test,” Chris says. “In our case, it made it stronger.”
Tips for Male Caregivers
“There is no manual on this,” says Vaughan, the freelance writer in Raleigh, N.C., who cares for
his father. “You learn day by day.” But here are seven tips passed on by men on the front lines
of caregiving.
1. If someone asks what they can do to help, have a list in the back of your mind and tell that
person.
2. Have something to look forward to—whether it’s a big trip or just a rental movie to watch at
home. Remind yourself that you will get through this.
3. Acknowledge your emotions. You’re human, not a robot.
4. Set up a group e-mail to keep family and friends in the loop.
5. If you’re a spousal caregiver, don’t put off shared pleasures. If you and your wife always
dreamed of going to the Caribbean and the trip is still feasible, do it now.
6. Remember that most of the little issues don’t count. Discuss them and find what works for
both you and your patient.
7. Learn as much as you can about your patient’s disease, even though it might be scary.
http://bulletin.aarp.org/yourhealth/caregiving/articles/the_new_face_of_caregiving.html
By: Cathie Gandel Source: AARP Bulletin Today January 23, 2009
When his wife, Chris, was diagnosed with breast cancer on their 19th wedding anniversary,
Dave Balch suddenly found himself with two full-time jobs: running his home-based software
business and taking care of her. “I don’t know how I managed everything,” says the 60-year-old
from Twin Peaks, Calif., whose wife continues to fight recurrences of the disease six years later.
“But you do what you have to do.”
Each year, more Americans are finding themselves in a similar situation—and challenging
preconceived ideas about men and caregiving.
“People think that male caregiving means that the guy calls home from the job and asks his wife
how his mom is doing,” says Donna Wagner, professor of gerontology at Towson University in
Towson, Md. “That’s not true at all.”
A 1997 survey conducted by AARP and the National Alliance for Caregiving, a research and
advocacy coalition, found that 27 percent of caregivers were men. By the 2004 update, that
figure was almost 40 percent, with more male caregivers (60 percent) working full time than
women caregivers (41 percent). Among the reasons for the increase: smaller families, longer
life spans, more women working outside the home and greater geographic separation of family
members.
While male caretakers face many of the same challenges as their female counterparts—
including depression, stress, exhaustion and reduced personal time—they approach their
caretaking role differently, say some experts.
“Men approach caregiving as a form of work, a series of tasks that needs to be accomplished,”
says Edward H. Thompson, coeditor of Men as Caregivers and director of gerontology studies
at Holy Cross College in Worcester, Mass. “I don’t mean that to sound harsh. It’s just the way
they look at things.”
Because they are used to delegating, they are more comfortable seeking outside help when
they need it, says Richard Russell, associate professor of social work at the State University of
New York’s College at Brockport.
Donald Vaughan, a 51-year-old freelance writer in Raleigh, N.C., has an aide come in three
times a week to bathe and shave his father. “It’s worth every penny I pay,” he says.
But despite feeling isolated, men tend not to seek help for themselves, at least not from
traditional support groups. Instead, some forge their own connections. In Rochester, N.Y., some
fellow caregivers meet once a week for breakfast. “The men talk about sports, politics and
grandchildren,” Russell says. “They don’t mention caregiving. It’s as if they have made a pact
that this is their time to be just regular guys.”
Men also try not to bring their caregiving situation into the workplace. They not only have been
socialized to keep things close to the vest, they also perceive a stigma associated with taking
time off for caregiving responsibilities—and sometimes a lack of understanding from employers.
John Young experienced that feeling firsthand. The 55-year-old nursed his late wife through
Lewy body dementia, a disease that combines the mental deterioration of Alzheimer’s disease
with the physical disability of Parkinson’s disease. When his wife became ill, Young was
teaching in a police academy in a Houston suburb. At first she was able to stay on her own
while he worked, but one day she called with an emergency and he had to rush home. “When I
returned, my boss called me in and asked, ‘How much longer does she have?’ ” Young says. “I
knew it was time to go.”
Even those who work at home have trouble juggling responsibilities. “Taking care of my dad has
had such a dramatic impact on my life,” Vaughan says. “One part of my brain is always on my
father. And my time is nickel-and-dimed throughout the day. It’s hard to get a long period when I
can do my work.” He interrupts his writing intermittently to make sure his father drinks enough
fluids and walks up and down the hallway for exercise.
“The worst part is the exhaustion,” says Gary Noble, 64, who cares for his wife, who has multiple
sclerosis. He also works as a bus driver in Livermore, Calif., and often has split shifts. He may
come home at 8:30 p.m. Before he goes to bed at 9:30, he has to cook, clean up and tend to
his wife’s needs. He needs to be up again at 3 a.m. “I’d appreciate just a few hours off
sometimes,” he says.
John Carlson, 57, of Woodbury, Minn., takes care of his 88-year-old father, who is in the early
stages of Parkinson’s. “The most difficult part is having time away from home,” he says. “Dad
covets my time, as most of his days are spent alone.”
While any relationship may suffer in the caregiving equation, the issues are particularly difficult
for those caring for a spouse, says Donna Wagner. Richard Anderson, president of the Well
Spouse Association, a nonprofit organization that provides peer support to those caring for a
partner with chronic illness or disability, agrees. He took care of his late wife, who had an
autoimmune disease, for 29 of their 31 years of marriage.
“Spousal caregivers are different because of the intimacy of the relationship,” he says. “It’s hard
to have sexual feelings toward your partner if you have to deal with incontinence and other
personal issues.”
Despite the difficulties these men face, there is some good news. “My wife and I spend a lot
more time together,” says Ray Heron, 57, of Charlottesville, Va., who has been caring for his
wife, who has MS, for 10 years.
The caregiving relationship has brought Chris and Dave Balch closer, too. “This can really put
your love for each other to the test,” Chris says. “In our case, it made it stronger.”
Tips for Male Caregivers
“There is no manual on this,” says Vaughan, the freelance writer in Raleigh, N.C., who cares for
his father. “You learn day by day.” But here are seven tips passed on by men on the front lines
of caregiving.
1. If someone asks what they can do to help, have a list in the back of your mind and tell that
person.
2. Have something to look forward to—whether it’s a big trip or just a rental movie to watch at
home. Remind yourself that you will get through this.
3. Acknowledge your emotions. You’re human, not a robot.
4. Set up a group e-mail to keep family and friends in the loop.
5. If you’re a spousal caregiver, don’t put off shared pleasures. If you and your wife always
dreamed of going to the Caribbean and the trip is still feasible, do it now.
6. Remember that most of the little issues don’t count. Discuss them and find what works for
both you and your patient.
7. Learn as much as you can about your patient’s disease, even though it might be scary.
http://bulletin.aarp.org/yourhealth/caregiving/articles/the_new_face_of_caregiving.html
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